Microphthalmia Anophthalmia Parent Support

Dear Mr. Herndon,

Microphthalmia Anophthalmia Parent Support’s (MAPS) mission is to provide parent to parent support to families and individuals raising children with microphthalmia or anophthalmia. A website has been established by MAPS parents to unite families worldwide, who have children diagnosed with microphthalmia or anophthalmia.

MAPS is providing this information to you so that you may distribute our website to families with children diagnosed with microphthalmia or anophthalmia.

MAPS is a volunteer support group started by a group of nine moms, who live across the United States. MAPS parents strive to encourage and support other families who may find themselves scared, alone and isolated, while trying to comprehend a diagnosis of microphthalmia or anophthalmia. There is a void in assisting parents as they begin preparing for life beyond the medical diagnosis. MAPS seeks to fill that void. We provide much needed emotional support, information, and resources to parents in their new world.

Our children at MAPS are not defined by microphthalmia or anophthalmia alone. They are all unique with various medical diagnosis along with M/A. Some of our children have speech delays, mental delays, motor delays, wheelchairs, walkers, feeding tubes, traches and some are just ‘blind’.

MAPS does not make medical or educational recommendations. MAPS’s goal is to illustrate that there is no one answer to most questions or situations relating to M/A. Every family and child is unique. MAPS has assembled resources, information, links and experience to help parents make the best decisions for their child. We hope our resources will empower families to make optimal decisions leading to the development of independent and competent children enjoying a life filled with success and accomplishment.

We ask that you distribute MAPS information to other families with microphthalmia or anophthalmia. You may visit MAPS at www.maparentsupport.com. We need familiar faces to guide parents to our site so that they too may become part of the MAPS family.


Amy, mom to Max (Missouri
Gwen, mom to Ivey (Georgia)
Heidi, mom to Aaron "AJ" (Massachusetts)
Jennie, mom to Max (Virginia)
Jill, mom to Ella (Ohio)
Megan, mom to Ava (Pennsylvania)
Michelle, mom to Matteo (Massachusetts)
Sheila, mom to Grace (Washington)

Tera, mom to Emma (Texas)